Flying with Parkinson’s disease

I face a difficult conundrum: I’m often invited to speak about translation studies in universities across the globe, but a 12 hour flight is not the most suitable for someone who is suffering from stiffness that gets worse if I remain sitting down for more than half an hour. Add in some anxiety amongst large groups of people (as a rail station or airport for example), plus a conscience plagued by climate change, and you will be able to appreciate that a long-haul flight has its downsides.

A couple of weeks ago I was kindly invited to speak at conferences in Hong Kong and Shanghai. It was a chance to catch up with old friends, meet new people, share my experience and learn from the work they are doing. People are sometimes surprised that I continue to make these trips. But for me they are enriching and, with a little planning, not too onerous. I normally ask for special assistance at the airport, which sometimes means I am pushed in a wheelchair, but, as long as I am not depriving someone else, I’m not too bothered because it means that I have a quick route through security and passport control. It’s there that I need a little help, taking things out of my bag and rearranging them after they’ve passed through the scanner. When I get to the gate I’m allowed to board first.

The employees in the airport are sometimes surprised to see me arrive carrying a rucksack and pulling a small suitcase and at the same time asking for special assistance. That’s the nature of the condition: semi-visible but always nagging. The assistance I receive is very important for me as it reduces the stress of the journey and makes the whole experience much more enjoyable.

I was met at the airport in Hong Kong and Shanghai by a student assigned to look after me. Many thanks to them! I find that on these trips everyone is always so keen to help me and I’m very grateful for it even if sometimes they are unsure exactly what I need. So I’d like to thank everyone who made my stay so enjoyable and rewarding. Just a couple of regrets: my delivery of talks has become more monotonous because of the condition and I need to work on making it more dynamic; to tell the truth, I didn’t help myself by forgetting my watch and being unaware that I had finished my first talk 10 minutes early. The other slight regret was food again. It was all so wonderful, yet I’d convinced myself that I could no longer use chopsticks because of my weakened right hand. Let me state clearly: ‘chopsticks beat knife and fork when it comes to eating Chinese food!’ It was only back home a few days later that I challenged my thinking and decided to take up the sticks again. The result can be seen in the video…

7 thoughts on “Flying with Parkinson’s disease

  1. princessamiraabdalla's avatar princessamiraabdalla July 24, 2019 / 17:59

    Great video Great to see you Dr Jeremy Good luck

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  2. Shari's avatar Shari July 7, 2019 / 14:04

    Great post! My PD related claustrophobia has prevented me from flying for a while now, and I am trying to get over it. I don’t have the perception of myself as someone who needs assistance and would not have thought to ask. I’m trying not to let PD steal my enjoyment of life, so despite the fear and anxiety, I intend to fly again the next time I need to travel a long distance unless we’re taking the travel trailer. Now I know to arrange for assistance ahead of time which seems like it would take some of the anxiety out of the picture. Thanks for the tip!

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    • Jeremy Munday's avatar Jeremy Munday July 12, 2019 / 13:36

      Many thanks, Shari. I admire your determination and wish you a good flight!

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  3. Michael's avatar Michael July 5, 2019 / 16:06

    Nice video. As regards myself I funnily enough also have reduced strength in the right hand but this is not the main reason why I am not really adept with the sticks; I wish I could use it as an excuse!

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  4. Mark Shuttleworth's avatar Mark Shuttleworth July 2, 2019 / 05:20

    Great to see you Jeremy – delighted you made it over to HK.

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