I haven’t really written much in the blog recently. The last post was at the end of September, just before teaching began, when I left a video for my students to explain the symptoms of Parkinson’s. Over the last few months, I’ve had some ups and downs – more downs than ups, I think sometimes. I certainly haven’t managed to produce posts as frequently as I had before the summer, so in the near future I would like to talk more about specific events such as the holiday in Malawi, the return to work, voice therapy and physiotherapy, amongst others. These are all Good Things. However, today I want to focus on the downs of Parkinson’s.
In the early summer I felt good, I felt I had a lot of strength, the temperatures rose, the sun was out and life was sweet. My posts were optimistic…. but Then Things Changed. If there is one factor I would like to be able to add to the treatment of the condition it would be to pinpoint exactly why things are sometimes better and sometimes worse. Why is it that my walking gets suddenly better whereas at another time on the same day I am shuffling from pillar to post bemused by the random pattern made by the sodden, slippery leaves that cover the pavement? Why is it that I sometimes struggle to get out of a chair? Or find it impossible to move my right arm or my right leg?
Stress and anxiety have something to do with it. In the summer, relaxed, everything seems much easier. As the new term approaches in September I get progressively more down and concerned. The question hovers over me as to whether I’m ready for it or whether this might be my last year lecturing. Such worries can completely paralyse me, just as a tense atmosphere or outbreak of anger will stop me in my tracks. So, in September and October I struggle with everything. Tai Chi becomes an obstacle course. Work piles up and emails go unanswered until something breaks the vicious circle.
Now in November things seem much easier. I know the students, I’m confident with the material and I know where I’m going. My family and all the health professionals I’ve seen this autumn helped to boost my confidence. The Consultant I saw last Friday cheered me up greatly when she said she could see I was better than the last time she had seen me. That was very positive; now I’m looking forward to the teaching this week.
Hi Jeremy
Very insightful post. Your openness I’m sure is encouraging for others living with Parkinsons. I’m glad all went well with your appointment in November. Wishing you lots more “ups” than “downs”
bw Anne Marie x
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Dear Jeremy, I just want to send you a strong beam of positive energy and best wishes for the ongoing term.. You are strong and courageous and you’ll be teaching for quite a few more terms, so many people want and need you to do so that it will happen!
I know it sounds banal but please remember that most of us, the university teachers of more or less your age, feel what you describe as “stress and anxiety” when the new term approaches after the summer break, and we ask ourselves exactly the same questions as you do. It must be all much harder for you because of your health condition but the essence is the same. Yu are brave and great, you will never give up.
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Hi Jeremy Thank you for the update I hope the week is going well.
I will be in touch (might phone Friday or over the weekend)
Bye for now,
Michael
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